Saturday, December 31, 2011

Mystery Boy

Well we are here at the Huntsman's Cancer Institute, admitted into the hospital. Josh has been extremely weak. If he walks five feet his heart is pounding, he's breathing really hard and he feels like he just ran a football field. When he's on his feet he is light headed, dizzy, and it's hard for him to keep steady and not fall. With all his symptoms, high fevers, mouth sores, extremely weak, coughing, we decided we better call our nurse. We were told to get down there as soon as we could. We decided to leave the next morning and he woke up feeling even weaker and also had blurred/doubled vision. He was very pale. They are nervous about his blurred vision.
Now that we are here they have ran lots of tests including, a chest x-ray, a cat scan, a brain MRI, an EKG. He has had six bags of blood transfusions. The chest x-ray showed that there is some sort of infection or fluid in his lungs. Right now they are treating him for pneumonia and fungus. He is on a bunch of antibiotics and antiviral medication. They are going to do a spinal tap to take a sample of spinal fluid checking for cancer cells, or viral infectious cells. They also want to put a tube with a camera on the end of it down his nose into his lungs and then biopsy what is going on in the lungs.
He's been poked a lot today and he's feeling pretty miserable.  He has had high fevers. Highest was 107.7 Last time he was in the hospital he got up to 109!
They are concerned about his super low blood pressure and oxygen level.
They moved him to the ICU so that he could have more attention from the nurses.
They call him the "mystery patient" because every test comes back negative! It's frustrating for everyone that we aren't getting answers for what is causing all his symptoms.

The brain MRI came back looking good. No big masses or tumors. The spinal fluid was also clear of cancer cells. So they think he has an infection, they are just trying to figure out exactly what it is and what is causing it. We are thankful they are being so cautious.


Grandma and Grandpa Blacker drove all the way here to see Josh! Tonight is New Years Eve!
Josh just woke up from them putting the tube down his nose to look in his lungs. He was pretty sedated. It is 6 tonight and he woke up thinking it was 6 in the morning! He's doing good, happy to get to sip some juice and eat some jello!


This picture was taken Monday night not very many hours before Josh's heart rate went crazy and they had to take him to the higher ICU, where they put in a ventilator, feeding tube, and catheter. He already had a pic line as well from a day or so prior.

6 comments:

  1. Megan, thank you so much for the update. We heard a little bit from Terra that something was wrong. We have been so worried. We have been thinking about you guys and praying for you. Big hugs from all of us here.
    Tami, Erick and kids

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  2. megan,

    ben and i read your updates together and just want you to know how much we love you, and your husband even though we've never met him.

    sending hugs from arizona,
    ben & lynsey strader

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  3. My uncle is a bishop in your stake and told us about Josh after my dad's battle with lymphoma. Josh's experience is like deja vu for us. My dad had a bad infection and was quarantined. H ended up getting multiple blood transfusions. They also thought he had a fungus infection. Vancomycin is what finally ended up clearing his infection (which was c. dificile), and it was awful. Our prayers and thoughts are with you and with the medical staff responsible for his care. We hope they get to the bottom of it quickly and that Josh turns the corner soon. Just know that there are many out there that empathize with what you're experiencing. Hang in there!

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  4. Megan,
    We are praying for you. May the Lord bless you daily with his love and tender mercies. What difficult times. You both are amazing, faithful and courageous. President Monson's message in this Months Ensign issue reminded me of the both of you. You both are facing your trials with a positive and a courageous attitude. Keep up the good fight. With love and prayers, Taral and Wendy Hull.

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  5. Hey Josh and Megan! We have been thinking about you two and praying for you both so much the past while. So sorry this is the first time I have posted! You guys are awesome and know you're loved by so very many! Hope to see you both soon! Love! Jared, Becka, and girls!!!

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  6. I've just got to say that Josh can rock ANYTHING! First the bald head, which I might add he still looks as handsome as ever. And now the pirate patch! We are praying for you both every day and want you to know what an incredible example you both are to us. We love you and know you can do this hard thing!

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